Isobel Knight discusses new research, co-morbid conditions and management strategies for hypermobile Ehlers-Danlos Syndrome in this Q&A. Find Isobel Knight’s books on hypermobile Ehlers-Danlos Syndrome here.
For those who are unaware, could you briefly describe what hypermobility is?
A hypermobile joint is one that has a larger than normal range of movement. If you look at the figure of the elbow picture below, the joint looks ‘inside out’. Hypermobile people tend to be people we consider ‘flexible’ or ‘bendy’, and as such there is a high prevalence of hypermobility in the dance and performing arts sectors.
Hypermobility can be generalized at a range of joints – for example knees and elbows, or sometimes found in peripheral joints (e.g. hands and feet). It is perfectly possible to have joint hypermobility and be asymptomatic, but for some people their hypermobility can cause pain, dislocations, soft-tissue injuries and there can be other findings – such as extensible and stretchy skin which might be more suggestible of a form of heritable connective tissue disorder such as hypermobile Ehlers-Danlos Syndrome.
There are now new and strict diagnostic criteria in place to distinguish between those who have generalized or peripheral joint hypermobility through to those who have what is now called a Hypermobility Spectrum Disorder (HSD) or hypermobile Ehlers-Danlos Syndrome (hEDS). The diagnostic criteria that I discuss in my books refer to the old names of Hypermobility Syndrome or Ehlers-Danlos Syndrome Hypermobility-Type or Ehlers-Danlos Syndrome (Type III) – but although the name and diagnostic criteria have changed, the overall management strategies remain very much the same for these conditions.
In this blog post by Thomas Attlee, author of Face to Face with the Face, Attlee explains the ‘Essentials of Cranio-Sacral Integration’, providing an overview of the key points, and providing three case studies: Tooth, Jaw and TMJ Pain; Hearing Loss and Trigeminal Neuralgia.
In 2013 Professor Peter Higgs received the Nobel prize for a concept he first proposed in 1964 and for which the experimental proof was finally provided at the CERN laboratory in Switzerland in 2012. Professor Higgs postulated that there is an invisible field pervading the whole universe.
Within quantum physics it has now been established that there is a universal field, a unifying matrix within which everything exists and interacts – every galaxy, star, planet, solid object, living being, molecule, atom, subatomic particle – a field from which particles take their mass.
In the quantum model of cranio-sacral integration, we also perceive a universal field or matrix, within which life on earth has come into being, and each one of us exists as an individual matrix within this wider matrix. We are formed embryologically, developed, maintained and sustained by the biodynamic forces within that field, and every cell, atom, and subatomic particle within our body is an integral part of that wider field.
Sitting at the kitchen table were my two children and my daughter’s two friends, who had come over to play. They were having lunch and chattering away as children do, when I heard, “Poppy’s got a reward chart,” after which there was a brief silence, followed by, “for going to the toilet.” I have to admit that this was not exactly what I was expecting to hear. I turned around to join in the conversation, asking “how does that work then?”
A feminine approach to therapeutic bodywork has interested me since I took my first tentative steps along this path sometime in the mid 1990’s. I noticed that in my field (Alexander Technique / Craniosacral Therapy) most of the practitioners are women and yet most of the courses and books on the subject are written by men. The feminine viewpoint is and always has been different, with a distinctive voice and function. Although a massive over-simplification, the masculine approach tends to focus on techniques and results, while the feminine may naturally relate more intuitively and compassionately. Continue reading →
by Jonathan Hinde, qualified Sukshma Marma Therapist and an Aromatherapist, based in Cambridge, UK.
There are, broadly speaking, two contrasting ways of viewing the body, and two correspondingly different approaches to healthcare: Modern western medicine has its emphasis on the purely physical; while the approach exhibited by oriental and traditional healthcare systems sees the physical symptoms as the ‘precipitated value of consciousness’ and seeks to engage with the subtle imbalances (which may be emotional, spiritual, etc) which have given rise to physical symptoms. Continue reading →
As a new author to Singing Dragon, Giuliana Fenwick’s first book, Indian Head Massage For Special Needs, sees the pinnacle of her work so far in a very short space of time. However, it is very much the beginning of the platform as she continues work as an author, public speaker and fundraiser for special needs, helping to give a voice to those who so often do not have one. Hear her story below… Continue reading →
The practice of Qigong Through the Seasons is designed to harmonize the health of your internal organs with the seasonal energetic changes of nature.
Autumn is the time to give special attention to the Lungs. Breathing is the most important thing you do from moment to moment and yet most of us are unaware of how we breathe and have lost our innate connection to the breath cycle. We, therefore, often fail to completely benefit from the power of correct breathing.
The Source of Qi
Breathing stands out as our quintessential rhythmic interaction with the world; lungs function as a permeable interface between each of us and everything else. The lungs are yin organs that receive air from the outside world, extract its healthy components and send them downward to the lower dan tian, the primary energy center of the abdomen, to be combined with the nutrients of food. That fusion of air’s vitality and food’s energy produces our greatest quantity of qi. In ancient times, the word ‘qi’ primarily had the meaning of ‘vital breath’ emphasizing that our indispensable energy comes from breathing.
Astonishingly, the lungs eliminate seventy percent of the body’s waste products. This makes exhalation a hugely significant detoxifying activity. We must completely exhale so that the respiratory system can flush out toxins and debris; only then can we receive a full complement of fresh air on the next inhalation. Stress, fear, anger, and doubt are the main emotional states that interfere with a healthy exhalation. Many people subconsciously don’t let go of the breath—they feel like they must hold on to that last bit of air, otherwise they may expire. The ability to completely let go of the breath often relates to issues of trust and relaxation.
The correct practice of qigong creates mental tranquility and thus will profoundly enhance healthy breathing by relaxing the lungs and allowing them to freely function. The following exercise, White Healing Mist, is the most important qigong exercise to do during the autumn season. It uses mental intention, body movement, and regulated breathing to purify and strengthen the lungs.
White Healing Mist Exercise
This graceful neigong (internal qigong) exercise fills the lungs with fresh qi while cleansing them of turbid qi. The intent of the mind uses detailed imagery of pure and impure qi. The movement of the hands leads the qi into and out of each lung. The ‘white healing mist’ can be any personal image that conveys a sense of purity, freshness, tranquility and healing. The ‘toxins’ can be not only respiratory debris but also cloudy, unhealthy thoughts. As the interface between internal and external worlds, the lungs command our self-defense system. When doing this practice, you may want to identify those healthy and unhealthy aspects of your life. Then you can nurture the good with the white mist, and purge the bad along with the toxins. Do this exercise slowly with focused concentration on one lung at a time. The unilateral emphasis is unusual since most qigong exercises are done for both lungs simultaneously, but that special concentration on one lung at a time increases the concentration of qi, which makes this a very powerful healing exercise. You can do this for the common chest cold and for all serious diseases of the lungs.
Begin with feet close together, hands crossed and touching the chest over the lungs. The right hand is over the left lung and the left hand is over the right lung.
Take a slow, relaxed breath and think of your lungs there under your hands. Make a mental connection between your hands and your lungs.
Step to the side with the left foot.
Inhale, shift weight to the left leg so that the left lung is lined up over the left knee. At the same time, open the arms and slowly, swing the hands forward and then laterally out until the arms are extended to the side with fingers up and the palms facing away from the body. Left knee is bent, right knee is straight.
Think of inhaling a white healing mist into the left lung only.
Exhale, step back to center with the left foot, straighten knees, the hands return to the chest, cross them so that the right hand is touching over the left lung. The left hand touches over the right lung.
Think of exhaling grey smoky toxins from the left lung only. Although both hands are touching your chest, your focused intention goes to the left lung only.
Repeat for the right lung by stepping to the right, etc. Do 8 repetitions, alternating left and right.
The complete set of Autumn Qigong exercises, along with suggested foods and herbs for seasonal health, are fully described and illustrated in chapter 8 of Qigong Through The Seasons.
Ronald H. Davis is an acupuncturist and chiropractor. He has been practicing Qigong since 1986 and is the founder of The Health Movement, a group of classes and educational materials designed to improve a person’s wellbeing through the use of traditional and complementary healthcare methods. Ronald offers classes in Qigong, Taiji and spinal healthcare and lives in Bozeman, Montana, USA.
If you are thinking of transitioning from a practitioner to a teacher I would definitely recommend it, especially if you have created your own beautiful course and have a passion to share it with the world. On the whole, the world is just waiting for you to share your vision with them.
As a maternity and fertility reflexologist I build powerful relationships with women at the most amazing times in their lives. Working with pregnant women is such an awe inspiring privilege with the therapist developing a connection to both mother and child. Very soon after making this career choice I realised that all too often the relationship ends abruptly after the child is born when really a whole new relationship should be starting. Babies absolutely love reflexology, whilst inside their mothers womb as well as skin to skin, so to speak!
For a long time after having this realisation I thought about how I could continue to see parents after their babies were born and the answer I came up with was to run a course for them. There was a problem with this idea though, what and how would I teach them? Just coming along for a session would be great but wouldn’t really be building any relationships or offering them the chance to bond with other new mothers. So the content needed to last for more than one session, be engaging, attractive and fun. I thought I might be able to create a course but there was a lot of work to consider and I really felt that without a proper concept it would feel a bit flat. I thought a lot more, for months, years even! As with all ideas they come after a lot of ground work has already been put in and one day in the bath an idea came to me of The Children’s Reflexology Programme, TCRP, and a lovely, simple story about a mouse that would visit all her friends and ask for help to make her new-found house cosy. The Mouse’s House and the development possibly for future courses were born. I have become a strong believer in the concept that if you work on ideas for long enough everything falls into place.
There was a lot of work involved in creating the book and finding Melissa Muldoon, the amazing illustrator, but after a year we self-published and shortly after that Lucy Buckridge, an editor from Jessica Kingsley Publishers, approached me and we now have the beautiful book that we see today. The Mouse’s House is a rhyming story of short verses where each of the animal characters represents one of the important reflexes and as you read the story to your child you work the reflexes as the characters appear. The result is a simple but complete treatment.
Almost two years after the creation of The Mouse’s House I started writing the first parent course to supplement the material in the book and help parents understand the reflexology better in a workshop style environment. The book with the animal characters had given me the concept that I had felt was missing from a course in the first place. I added a few more reflexes to the course which meant coming up with more characters. I felt that this would add value and would allow me to create specific treatments for a variety of minor conditions of childhood.
The first courses went out in the autumn of 2014 and I was a nervous wreck! I felt pretty exposed standing in front of an audience and teaching my course for the first time….but the mums loved it! I received messages from the very first day telling me how the reflexology had worked for a variety of conditions that their children were suffering and they couldn’t wait for the next session. I ran three courses for one hour a week over six weeks. The youngest we had on a course was four days old and he was suffering from constipation – but not for long! Everyone got something out of the course and all of them have continued to give their children reflexology since with the beautiful handouts that they received and their own copy of The Mouse’s House, which make up a parent pack and which the children loved.
The feedback was fabulous and inspired me to continue, so after Christmas I began writing an instructors course. I realised that if I wanted this to reach the number of people that I was thinking of I would need more than me out there teaching it to parents. I had already been thinking about the concept of a website that would link the instructors to their courses and allow anyone anywhere to find an instructor in their area. I had been asking my husband, who is a programmer, if he could design such a website for me and in January he started to work on what we have now. A large part of the instructor business is based online with lots of marketing materials and the Google Earth link to the site. So we had a way of instructors reaching their parents and telling the world that they were here.
One of the most important factors for me in creating TCRP was empowering parents. I wanted to bring the powerful effects of reflexology to them in a simple fun package that they could utilise anywhere and at any time. So now that I was writing an instructor course I thought about what I wanted to achieve from this course and again I wanted to be able to empower parents. I thought about the baby massage business model where there is no pre-requisite to be a massage therapist to train and I thought how wonderful it would be to be able to offer parents, mothers in particular, the option of having a sustainable, ethical business that they could work at alongside their parenting and which would be holistic and positive in supporting other families in such a beneficial way. Having seen mothers who’d had to go back to work, leaving their baby when they didn’t want to, it felt great to be able to give them another option, as a long term business plan or for a short time until they were ready to resume a career.
For me this was a huge thing. I felt that I was breaking many rules. As far as I was aware, in this country, all infant reflexology courses were taught by qualified reflexologists and mine would be the first to change this ideology. It wasn’t just parents that I wanted to offer this training to. Baby massage teachers, baby yoga teachers indeed anyone who worked or had a healthy interest in helping parents and their children would be able to train as an instructor.
By March I was pretty much done. The coursework was beautiful and there was lots of it! All the reflexology was wonderfully simple, clear and most importantly engaging. All the reflexology protocols had been carefully created by a professional reflexologist and the marketing material was all to a very high standard.
On a whim, in March, I published details of the first course – just to see what the reaction would be – and I got an instant response from several people. The first course ran in April and was a great success and a huge amount of fun. As I was aware that being the focus of attention wasn’t my favourite thing I built in lots of things for the students to do to draw it away from me. So much came out of this first course. Once you create something new it is often surprising how many different avenues can open up. The second instructor course ran in June and this enabled me to apply for approval from the Association of Refelxologists in the UK. I sent all the course work off, feeling very nervous about what they would say in regards to the not needing to be qualified to train. I have to admit to being quite flabbergasted by their response! They loved it and wanted to approve it but wanted me to make a couple of small changes – mostly in relation to teaching the reflexology to trained reflexologists, which was fair enough. I now have approval and the good news is that reflexologists only need to do two of the normal three days’ training.
I have lots of courses planned and have been in close contact with many wonderful reflexologists around the country who are helping me to set up all sorts of new initiatives with this concept. There are a lot of areas opening up that I had never really thought of and whole new concepts coming out of this one too.
I have also continued to write books and have written two more and am half way through a third for older children. Writing has become my passion and empowering parents through reflexology my mission. I really hope that infant reflexology can become as mainstream, accepted and appreciated as baby massage – but let’s not take forty years to make it happen this time!
Susan Quayle is an experienced reflexologist and complementary therapist who has developed her skills and qualifications to specialise in the areas of fertility, maternity, babies and children. Susan has created and developed ‘The Children’s Reflexology Programme’, which uses her guide The Mouse’s House. The course has been approved by the Association of Reflexologist. To find out more, including dates and venues across the UK, please visit www.kidsreflex.co.uk.
Susan lives in Devon, UK and her clinic is based in Exeter and at her home, she now spends much of her time empowering parents with reflexology through her innovative books and courses.
In this interview Steve Haines, author of Pain is Really Strange, discusses the topic of pain, he explains the reasons behind his choice to write a book about it using the graphic medium and tells us what people can do to manage pain.
Read the edited interview here:
Why do a book on pain?
There’s an awful lot of pain around. There was a huge survey done in Europe: 1 in 5 people experience chronic pain. They have persistent or severe pain for more than six months. For many of them, the median time was a number of years.
People manage large amounts of pain. Pain is a universal human experience; everybody knows what pain is.
The really exciting news is that there is a revolution in how we understand pain. The goal of the book is to try and explain that. How pain works is actually a little bit counterintuitive, a little bit strange. Some of the things that people think cause pain actually turn out to be not quite as central as folklore would have it.
Why do a graphic book on pain?
Education is a central tool in changing pain. The goal of using images it to make it light and really accessible. A good image can communicate an argument and idea very quickly. The book emerged from lots of lectures and talks I’ve given over the years. I have been endlessly trying to find creative ways of explaining how pain works to my clients and students.
I was incredibly lucky to meet Sophie Standing. I have really enjoyed how she’s visualized the work. She surprised me sometimes about how she took an idea that I’d been familiar with for a number of years and just showed it in a very different way.
I think that graphic novels can be very powerful tools. Pain Is Really Strange is short and sweet, 36 pages, but there’s an awful lot of information packed into the book. The images try and really crystallize ideas into something simple.
Who is the book aimed at?
The book is for everybody. Everybody experiences pain, and I think everybody can learn from the new science. The current research can really help us change our idea and experience of what pain is, even really difficult chronic pain.
I would offer that everybody should be able to stand, walk, sit, and sleep, without issues. You might not be able to run a marathon anymore, and you might not have the best tennis serve that you had when you were in your 20s, but ordinary movements of sitting, standing, walking, lifting your shopping; it’s actually often possible to get people to a place where they can do those everyday functions with ease reasonably quickly. That makes a huge change in happiness and vitality
What is the central message of the book?
There is something that you can do to change your pain experience. There’s always a change in behaviour, a change in how you think, feel, move that can be used to creatively stimulate your brain to do something different.
The really central message is: think of pain as a bad habit or an alarm system that has gone wrong. Short-term it was very useful, but long-term chronic pain serves very little purpose. We can unlearn the pain habit. We can train our nervous system to respond differently to the information that’s coming in.
What is the hardest thing to explain about pain?
By saying: “Pain involves the brain,” people often feel that you’re saying that it’s their fault. That’s really not what I am saying. I like to talk about the mind, the brain, and the body. The mind is our consciousness, our awareness, our sense of self. The brain is in between the mind and the body. Pain is an output from the nervous system, not an input.
The brain can make mistakes. It gets into habits or reflexes. Evolution has taught us to respond to the threat of danger very, very quickly, and sometimes in those quick responses, we go down fixed, hard-wired, old patterns that are hard to break out of. But, and this is the important bit, reflexes and habits are responsive to new learning; we can learn to respond differently.
There’s no one answer to pain. For me that’s very exciting, but it can feel overwhelming and confusing. It implies that creativity, learning to do things differently, is possible. A complex nervous system will benefit from a multitude of responses. Culture, society, family, stress, how we eat, emotion and metabolic activity in our body are all deeply relevant to the pain experience.
What can people do to manage pain?
Mostly, it’s about being creative. Do something different. Whatever you’ve been doing, if you’re still in pain, it’s not working. Try a new approach. We can move differently, understand differently, feel differently, describe ourselves differently. The book explores some simple hints about how we might do those things, but the essence is change and creativity in response to the danger signal, and not going down fixed, hard-wired responses.
Understand that reflexes that were useful when you really needed to protect the tissues as they repaired are no longer useful after the tissues have repaired. Tissue repair takes no more than a few months. In chronic pain the nervous system needs recalibrating.
For me, the book is a very hopeful book; there is something you can do to change your pain experience. Pain isn’t about tissues. It’s about an alarm system in the nervous system that’s exaggerated and is no longer accurate about the state of the tissues.
Steve Haines, June 2015
Or listen to the full interview here. Linda from Singing Dragon asked Steve Haines some questions…
Steve Haines has been working in healthcare for over 25 years and as a bodyworker since 1998. He is the co-author of ‘Cranial Intelligence’ and author of the short graphic books ‘Pain Is Really Strange’ and ‘Trauma Is Really Strange’. Understanding the science of pain and trauma has transformed his approach to healing. He has studied Yoga, Shiatsu, Biodynamic Craniosacral Therapy, and Trauma Releasing Exercises (TRE). He is a UK registered Chiropractor and teaches TRE and Cranial work all over the world. His treatments now use education, embodied awareness and light touch to help people move more freely and be more present. Steve lives and works between London and Geneva.
“My book is about a still form of exercise that incorporates mind and body, and I hope that aside from the physical, readers will take heart and embrace the idea of being in the present. It sounds cliché but it seems all of us are involved in everything but the world in front of us.
In our hectic and busy lives we forget that there must be moments where we stop for a time and look around us, or simply close our eyes and be in the present. I am not talking about having a full blown meditation on a commuter train, although what the heck, you may want to try it. I try often to do this, to have these small moments (not full blown meditation on a commuter train) as I work extraordinary hours and small breaks are nirvana to me. Even for a minute or two I have found it beneficial to walk outside look at the sun and sky, take a deep breath, and think about what is happening at this moment in time. It seems like the enemy for these moments are those devices which were sold to help us save time and make things easier. I haven’t really seen that materialize. Have you?
I am disappointed that all of the science fiction movies and TV I watched as a kid that painted such a rosy picture of the future, didn’t happen the way they described. I don’t mean the flying cars, which I guess, will never happen, I mean the promise of the ease of daily activities. The one thing I noticed in science fiction was that no one was ever in a hurry. In 2001: A Space Odyssey, when Dr. Floyd is briefing the others on the space station, they were completely relaxed. They were talking about other life in the universe and they could have been discussing color swatches for interior décor. “Open the pod bay doors, Hal,” And this is when Bowman is facing death in the vacuum of space! Sure, Star Wars has some excitement, but they are shooting lasers at each other. I don’t see that I have more leisure time because of technology, and that machines are doing things for me, so I can relax on the couch. Like most people I have ended up serving the machine! Now we work everywhere. Is that an advantage? Only to the work, I think.
We are all tethered to devices that are merciless task masters. ‘Ding!’ There is a text! ‘Swoosh!’ That is the email asking about the text. ‘Swoosh!’ There is that Facebook post from the kid who sat in back of me in high school. He found me on Facebook and now I look at his posts of his family vacation and ‘like’ pictures out of some kind of bizarre obligation. ‘Ding’ a text reminding me about something that I didn’t forget, but the text requires that I respond so that the other person doesn’t get offended. Now I insert the proper emoticon and…’Swoosh’ email arrives notifying me about a picture of a plate of food that someone thinks is incredibly important. With the internet, you can read just about everything ever written by Joseph Conrad, but we use it to send pictures of plates of food. For some reason we do all of this while life is streaming by and we give it barely a notice. What the heck!
These devices are so insidious they have wrapped their tentacles around our children as well. (or did we do the wrapping?) We are often found staring stoop shouldered at our palm size czars while our children are enthralled by a screen encompassing their entire field of vision, and we all MUST HAVE IT! What are we doing? Why are we doing it? Look at this device! Look at all the things it does! Perhaps we need to be asking if we need it to do all of these things.
I have stood talking to people looking at a phone, with earphones in their ears, and they have told me: ‘Don’t worry, I’m paying attention to you.’ Really? I beg to differ. Two of their senses are occupied and tasting me is out of the question.
Usually, we think of the phone or other device as our connection to the world, when in fact it is the exact opposite: It is our disconnection from the world. The world is happening in front of us and all around us. Do we even notice? Often I am criticized for not taking pictures of events. But I refuse to do it. I don’t want to document my life for myself or anyone else. I want to experience and live it. Not to mention the fact that I don’t think my life is all that interesting to anyone but me. A few events, may be worthy of note, but a daily dose of minutiae?
So are we disconnected? How disconnected can we be? Laws have had to be passed so that we don’t type one fingered messages to others while driving a one ton death machine on a public road! Now THAT is disconnected.
So what do we do? I don’t suggest turning your back on technology. That is unreasonable. I only think we need to be prudent in its use. Give attention to what is important, and realize that what you give your attention to, whether we realize it or not, is what is most important to you at that moment. Once when I was pushing my son on a swing and checking my email on my phone, I realized that what I was looking at was the most important thing to me at that moment. That really struck me, so I put it away and when I am interacting with my son I make sure I give him the same attention I demand of him.
What about emergencies? Let’s face it if we ever only used our devices for emergencies they would be dusty and full of cobwebs. If we put them away for a moment nothing will happen. Sadly, we all must realize that we are not as important as we think we are, and we are really only important to those close to us. How often do we give our time and attention to others at the expense of the ones that care about us?
So what do we do? There are small things we can do, and I have provided some suggestions below. However, having an overall awareness of the fact that we are making choices is important. We are not helpless, unless we choose to be.
These are some things that I have found useful.
When you are by yourself, periodically, at least once a day, turn off your phone, or at least the volume, and be alone with your thoughts. If you have to ask what you should think about, do this more often than you were originally planning.
Require full attention of those that interact with you. No checking texts while speaking with you. No glancing to see if anything came in. I have instituted a “walk away” policy for myself. If when speaking with someone they choose to do other things, so do I.
Do the same as above for others. (How often did I catch myself doing this stuff? Too often.)
Look in the night sky and try to find a constellation of any kind.
Look at the daytime sky and observe the clouds or anything that is there.
Stop and think about how you are right now. What do you feel?
If you don’t like your child spending so much time on a device, then make it stop.
Breathe deeply by inhaling for a count of 5 and exhaling for a count of 5.
Choose to use technology to make your life easier and realize that nothing is an emergency but an emergency.
When I was writing my book I tried to talk about being present, as standing qigong is definitely something that helps cultivate this practice, but I wouldn’t want someone to think that they can’t simply start being present immediately. I hope you read my book and the others that are coming. Now, turn off your ringer and try the suggestion where you take in a breath for a count of 5 and then exhale for a count of 5. Do it now. Breathe in: 1, 2, 3, 4, 5. Great! Now, without holding your breath, breathe out for 1, 2, 3, 4, 5. There, that is it. Look around you. Look up, look down. This is where you are. Doesn’t that feel good? This is where you are.”